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Post by Charlie on Feb 23, 2014 17:41:10 GMT
I started this forum as a way to store information in a logical order for those having to deal with CSID but there are several other good websites of information. The idea of this page is to help those in the UK look for answers from hospitals but also where to shop and what products are safe in the UK specifically and how to access them. CSID Cares- This is a fantastic resource so I may just link onto this rather than doubling up alot of the information. It has alot of very well researched information about CSID. www.csidcares.orgAnother one, that is still being updated and was the first page I read when CSID was suggested to me, again with alot of good information is: www.csidinfo.comThere is also a very good facebook page CSID patients and parents run by Aileen De J which has alot of information on it.
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Post by Lori on Nov 20, 2017 22:47:51 GMT
Charlie, Thanks for posting these links! Our 17 year old son was diagnosed in February with disaccaridase deficiency (CSID). My husband has FM. I would love to know of any resources or recipes or products you have found that are suitable for both issues.
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